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Testimony of Beverly L. Malone, PhD, RN, FAAN
President, American Nurses Association
before the
Senate Committee on Health, Education, Labor, and Pensions
"Key Patients' Protections: Lessons from the Field"
March 11, 1999
Mr. Chairman:
It is a pleasure to be here today, and I appreciate the opportunity to speak before the committee
on behalf of the American Nurses Association, the members of our 53 state and territorial
associations, and the patients served by the more than two million registered nurses across the
nation.
Nurses are on the front lines of health care, in virtually every health care setting, and the cornerstone of the nursing profession is patient advocacy. It is from that perspective as patient advocate that I speak today, and it is from that perspective that ANA has endorsed S. 6, the Patients' Bill of Rights, as the legislative vehicle that best meets the need for strong, comprehensive, enforceable legislation to protect consumers called for by the President's Commission on Consumer Protection and Quality in the Health Care Industry.
I am pleased to have the opportunity to join with several of my fellow commissioners in
discussing the need for patients protections and for improvements in health care quality. It is
important that we not lose sight of the first principle for the Consumer Bill of Rights and
Responsibilities adopted by the Commission: All consumers are created equal. The Commission
was clear that its work must apply to all consumers, regardless of the type of plan they have or
where they live. S.326, the Republican Patients' Bill of Rights proposal, misses this point
entirely. It is not acceptable to establish a national standard and then leave millions of
Americans to the vagaries of state legislation. If the states should choose to strengthen the
standard to fit their particular needs, that is all to the good. But the goal for this legislation is
basic protections, not Cadillac standards.
The Committee had asked that this testimony include the priorities for my association and I am
happy to address some issues of particular interest to nursing. But I do want to make it clear that
ANA strongly supports a comprehensive bill. We are concerned that narrowing the focus of this
legislation to avert controversy could result in legislation that would not meet that basic criterion
of the Commission's report that all consumers should have equal protections and that there is a
set of protections that should be in place.
Specifically, ANA believes that it is crucial that any patient protection legislation contain
protections from retaliation for health care professionals who advocate for their patients. The
language in S.6 is carefully drafted to protect nurses and other professional health care providers
from retaliation for meeting their professional commitment and obligation to advocate for their
patients' health and safety. This protection is included in the same part of the bill as a provision
to prohibit health plans from interfering with communication between health professionals and their patients. The intent and purpose of the two provisions are the same: it is crucial to patients
that their health care providers be free to advocate for their patients' health and safety.
The bill should contain language prohibiting discrimination against health care professionals
solely on the basis of type of licensure. Anti-competitive behavior of this sort limits a
consumer's access to care and choice of practitioner. The language of the Commission's report
is consistent in recognizing that health care is much broader than medicine and it is important
that legislation not permit inappropriate restriction of health care practice to the medical
profession.
At the same time we strongly oppose language which inappropriately specifies access to
"physicians." For instance, ANA supports the concept of making sure that women and children
have direct access to ob-gyn and pediatric services. However, ANA is strongly opposed to
language that would designate only physicians as primary care providers in those circumstances.
Pediatric nurse practitioners and certified nurse midwives are primary care providers, with their
scope of practice determined by state law. The goal must be to provide more choices to the
consumer, not fewer. The emphasis of any such language should be on the provision of services
not on the type of license a practitioner might hold.
With respect to the related issue of access to specialists, in general, the definition of specialist also should refer to "health care professionals." For instance, in the field of mental health, there are several disciplines in which referrals to non-physician practitioners would be appropriate.
Finally, ANA believes that consumers must have access to a full range of information about
health plans and providers. A market system can only work if consumers whether large
purchasers or individuals have the information required to make informed decisions.
Specifically, one type of information that must be available is staffing: studies are showing that
there is a direct relationship between staffing levels and quality of care. However, hospitals and
other health care institutions are not required to make staffing information available, a problem
that not only denies the information to consumers but also hampers research on that relationship.
Mr. Chairman, the American Nurses Association believes that we must have a bill that is not a sham with titles that sound good, such as access to emergency care, but then defines that access in a way that can make it meaningless in a true emergency. We cannot accept legislation that leaves a large segment of the population unprotected.
For the nurses at the bedside, the need for patient protection and patient advocacy is played out every day, and ANA will be steadfast in its support for genuine, comprehensive reform.
Thank you. I will be happy to address any questions Senators may have.
Return to the testimony listing.
Return to the Legislative Branch.
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